Information Is Power!

One of the best ways to advocate for yourself is to do your homework and learn about your condition.  Well-educated patients are better able to manage their health and actively participate in their care.  Here are some organizations that provide updated and reliable information:

National Institute of Health/National Institute of Neurologic Disorders and Stroke (NINDS)

NINDS Health Education – https://www.ninds.nih.gov/health-information/disorders
NINDS Patient Organization Search – https://www.ninds.nih.gov/health-information/support-resources/patient-organizations

General Brain Health

American Brain Foundation – https://www.americanbrainfoundation.org
United Brain Association – https://unitedbrainassociation.org

Alzheimer’s Disease & Related Dementias

Alzheimer’s Association – https://www.alz.org
The Association for Frontotemporal Degeneration – https://www.theaftd.org
Dementia Society of America – https://www.dementiasociety.org
Lewy Body Dementia Association – https://www.lbda.org
Parkinson’s Disease – https://www.michaeljfox.org/
Primary Progressive Aphasia – National Aphasia Association – https://www.aphasia.org/aphasia-resources/primary-progressive-aphasia/
Posterior Cortical Atrophy via Alzheimer’s Association – https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia/posterior-cortical-atrophy

Other Neurologic Conditions

American Brain Tumor Association – https://www.abta.org
American Stroke Association – https://www.stroke.org
Autoimmune Encephalitis Alliance – https://aealliance.org/
Brain Injury Association of Massachusetts – http://www.biama.org
CDC: Traumatic Brain Injury & Concussion – https://www.cdc.gov/traumaticbraininjury
Encephalitis Society – https://www.encephalitis.info
Epilepsy Foundation New England – https://epilepsynewengland.org
National Multiple Sclerosis Society – https://www.nationalmssociety.org/Chapters/MAM