Adjusting & Staying Connected

Neurologic conditions and cognitive changes can significantly impact behavior and personality, and as a result, change relationships.  Often overlooked is the emotional response of friends and family members. 

Friends and family members go through their own grief process.  Fear and helplessness may push them away just when connection and support are  most needed.  Loneliness and social isolation are increasingly recognized as major health problems.  Individuals with neurologic conditions are especially at risk for cognitive decline if they become socially isolated. 

Talking openly about your neurologic condition, identifying new ways to connect, and coming up with ideas for how friends and family can be supportive are some ways to maintain relationships.  For many people with neurologic conditions and cognitive changes, this can be difficult to do independently.  A therapist or counselor can help.  It can also feel good to be around others who are going through something similar.  Many people forge new relationships in support groups and communities.

Finding Additional Support

For many people with neurologic conditions, navigating the impact of cognitive changes on relationships and finding new ways to connect can be difficult to do independently.

Some may find it helpful to seek support of a therapist or counselor.  See our “How to Find a Therapist” guide for next steps by clicking here.

Many individuals and families living with neurologic conditions also find it helpful to connect with others who are going through similar experiences.  Here are some support programs you may find of interest:

• Alz Connected – Community Forum
• Brain Injury Association of America – Virtual Support Groups
• Dementia Mentors
• Epilepsy Foundation Community Groups
• Parkinson’s Support – Jewish Family & Children’s Service
  
• Smart Patients Parkinson’s Disease Online Community
• Stroke Support Group Finder | American Stroke Association