David Weinberg

David Weinberg is a former BWH pathologist who developed a second career in photography. He became a caregiver when his wife, Louise, developed atypical Parkinson’s disease and experienced significant physical and cognitive decline in the last few years of her life. He documented her experiences with Parkinson’s disease and Parkinson’s dementia is a series of photographs in collaboration with Louise. Through her descriptions of her hallucinations, he constructed images that she agreed closely resembled her visual experiences. Her hallucinations typically consisted of passive figures who did not speak or interact with her, faces draped in cloth or stockings, small animals, and children. Although she found these images bothersome, they were generally not frightening. In fact, she found some hallucinations mildly entertaining.

In 2019, they exhibited her artwork and his photographs in a joint show at Galatea Fine Art in Boston, entitled “If You Could See What I See.” Louise died in 2021, and continued to find enjoyment in making art until the very end.

Joe Wallace

Joe Wallace was first trained as a journalist. He has been a portrait photographer and storyteller for twenty years. Like many, Joe has a deeply personal connection with dementia. His maternal grandfather and hero, Joe Jenkins, had Alzheimer’s. His maternal grandmother Elizabeth Ponder (Bebe) had vascular dementia. And in recent years, his mother Barbara has begun her journey with the disease.

Joe was frustrated by the common, one-dimensional narrative of dementia—futility, despair, and loss. These are real and important elements of the dementia journey, but by focusing only on the narrowest of views, do very little to change the stigma of those living with the disease. In many ways, showing the stereotypical perspectives only makes it easier to continue ignoring the burgeoning health crisis and the individuals themselves.

Joe feels strongly that to give the audience courage to act in ways large and small, you must to show the whole story. The artist must not be afraid to show not only the fear, loss and despair, but also the love, connection, dignity, and powerful humanity that always remain—in the subjects, in the care-partners, and in the families and communities. That is the only path to evolve the narrative and have a positive social change.

 

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Charles Contant

I took these images on a once-in-a-lifetime trip to Australia in 2018 to see my daughter receive her PhD. It was a couple of months past the two-year anniversary of my craniotomy for a meningioma. That surgery affected my right frontal lobe, and greatly diminished my ability to do algebra and write computer code. Not a good situation for a professional statistician. However, I honestly believe it opened up my appreciation for visual beauty. Colors, shadows, patterns all seem to become deeper and have more flavor. They also captured some of the emotions I felt, both at the time I was looking, and of my general emotional state. I still take images of objects that mean things to me; birds, people and, especially, color and shadow.

Two Lily Flowers on the island of Tahiti
Actually, there are two flowers and a bud. The vibrant color of the flowers, against the dark background of their pond, was an obvious picture I wanted to save. They are full of the light and vibrancy of their life. Yet, underneath the flowers and lily pads is the dark water in which they thrive. I find this image hopeful.

Beach in Australia
I love the contrast and shadows on this beach. It was later in the day, and the sun had just broken through the overcast sky. The shapes of the little sand mounds, the long shadows, the tufts of grass holding on to the beach, even the gray sky, all seemed to make a wonderful set of visual textures. It might look like a sad scene, but I thought it was a powerful play of light and color. Reminded me how things can change with the light and wind and time, and create beauty.

Puppy on the Beach
This image is not from the Australia trip; it is from a trip we took to Aruba about 8 months before the Australia trip. We had gone to Eagle Beach, which is beautiful in itself. I was lucky to catch this guy running along the beach in the sheer joy only a puppy can have at being alive. He jumped up to catch something only he could see, and here he is in midair, with the setting sun behind him. Life has joy.